Thursday, March 05, 2009
oh and one last thing...
Before the weekend comes...
Not a whole lot to say really, only that I've made it to 29weeks on Monday (I guess it will be nearing 30 weeks shortly!), and that the Tarbert communion is this weekend. I expect I'll be quite worn out by the end of it all but maybe I'll just have to make Sam work harder... ;) don't worry, I'm not serious.
Friday, February 27, 2009
(enter interesting title here)
So Amy went through the MRI just fine and the puncture. I was worried because they had her fasting from 3am in the morning till after the scan...and it just happened to be that they were having difficulties with the machine and therefore the scan (which should have been in the morning) ended up being in the early afternoon. But, she survived and though groggy when she woke up she was basically herself (so I was told).
Must check cookies...mmm fresh chocolate chip cookies. Cookies checked and Sam is asking for another one, I guess they pass? ;)
I was going to post this photo awhile ago addressed to the Guy (Waiter) at IHOP...this is what happens when you offer broccoli for dessert at least with my daughter! :)
Sunday, February 15, 2009
Going very well!
Another note, I think we are about to go through another round of colds...third time in the past month and a half. Aaron has been having a fever for almost two days next to congestion. Thankfully ibuprofen works well, as does calpol (something like tylenol) but it does mean lots of restless nights with Aaron between us. But we love him, (of course we do!) if only you knew what it meant to see this little man smiling at you in the middle of the night when he is running a fever and supposed to be sleeping...it is quite priceless.
And for those of you who don't know it already, we're to have a visitor stay with us for some time. My brother (in law) Samuel is coming next week Tuesday already! I'm excited can you tell? :) Oh, and thats Aaron gone off to sleep. Good. Now if only Amy could get a wee nap, I could run to the store. :)
Ah, and thats Amy sleeping now too! Just means my shopping time will be cut in half if not more. :) Hope you all have a lovely weekend.
Thursday, February 12, 2009
Someones *growing* acomplishment!
Wednesday, February 11, 2009
Short update...
Amelia still has these trance like seizures and upwards still of 9-10 a day...so, it isn't as if it is just one a day, but many. Yesterday before I knew it I heard a loud thump and ran into the room and found her on the floor...she had a seizure in her chair and fell as she loses control of her body muscles I suppose. Today she seems to be doing quite well, but usually the mornings are the best anyways have yet to see this afternoon.
I'm also dealing with a very needy 1 year old...soo, off I go.
Saturday, February 07, 2009
a picture post
I think we've been settling back into a routine again and it feels nice! Unfortunately I still have to deal with Amy's seizures (not the ones where she is shaking and very stiff) and it isn't always easy. For example I was in the kitchen last night cleaning up the dishes and keeping my ear open for strange noises when it went silent in the next room...I went in and saw Amelia on the floor in a trance looking at the ceiling. She had fallen over obviously...but it just reminds me how I can't let her climb stairs by herself nor go down them by herself! We've got colds just now (again!!) and it has to have the cough too, so Amelia is awake in the middle of the night hacking away...I find cough syrup takes toooo long to start working. So yes, sleep deprived we are - nothing new there though! :)
So, here is my first picture...and it is rather special to me now after the week we've been through. Doesn't she look princess like? Yes, she is our little princess, delicate in some ways and stubborn in others. This is the skirt I sewed for her before she took these seizures, looks ladylike if you ask me! Thanks to Care for the pattern - it worked out lovely.
This photo was taken the Saturday before we went up to Stornoway the first time to see the doctor. That is Jett walking on the beach in Northton. It was nice to see something calming when we were going through so much.
Another scene of the beach in Northton...one of my favourites although Jett likes the other one I caught in which the picture is sharper, but this one seems softer to the eyes... :)
I've been wanting to get the hills with snow on the top and so far these are some of the better ones I've been able to capture. This is outside Tarbert on the way towards Stornoway.
And here it when she had the EEG done. About 16 wires were GLUED to her head and I mean glued because she still has spots of glue on her scalp. She had to carry around a little bag attached to her waist in which a usb cord was connected to a computer with a camera...yes, that meant she couldn't get around very far, thankfully this was done in the afternoon so it wasn't hard to keep it from bothering her during the night.
After she was disconnected from the computer the next morning she was able to go and play, and here you can see the bag she had to cart around.
Looks dreadfully uncomfortable, but she didn't seem to notice, the toys were great, and huge selection and plenty of them.
Nearing the evening time, when Amelia got all the wires off, and then had a fun fun bath...I suppose they just got tuckered out here.
I like this one. I know Aaron was drinking but he was smiling so much at the same time. And Amy was happy too.
Oh, and I'm almost 26 weeks pregnant (Monday)...wow, by the way, I think it will be a boy...but how do I know, both pregnancies before I said the same thing and was right only once...maybe this will surprise me and be a girl haha...I have doubts though. :) Whatever he or she is, I think I'll love s/hejust as much as my other two. :)
Wednesday, February 04, 2009
Happy 1st Birthday Aaron! (and a update)
Yesterday was our son's first birthday, unfortunately we couldn't really celebrate it due to the circumstances, yet Mrs. Macleod had a gift wrapped and ready to give him that morning! It was very sweet of her to think of it, and both Amy and Aaron enjoy those blocks very much! I suppose I'll just have to make my birthday a joint celebration ;).
Amy is still to have further tests done on Feb 24th. One is the MRI scan, where they will have to put her under, and the second test is for some kind of food disorder...well, the second is a bit more difficult to explain hopefully I'll get the proper name for it on the 24th. She is also still having seizures and quite regularly throughout the day (usually just before naptimes and bedtimes) this isn't including the seizures she has throughout the night which I have no idea how many there are. She is a complex case, as she has two types of seizures one is when she goes into a trance like mode in which she stares into space and usually doesn't respond to our commands or voices, the other is when she gets all stiff and shakes quite a bit...I can't say I'm getting used to seeing them, but I have to accept them as part of this whole disorder (if epilepsy is a disorder?) I do admit to handling them better as I understand more about epilepsy, though it is still hard to take not to mention being pregnant and handling it all at the same time!
Another note, as someone mentioned glue ear causing fits in her little one, which made me have to ask the doctor again that we DID rule out infections that could cause seizures, and of course he was able to explain that 1. Such and such test ruled out the infections, and 2. The evidence is so much to prove that it is epilepsy (well that is basically what he said although he said it in great detail much to my satisfaction!) I really didn't think it was glue ear (an ear infection) as Amelia has never had problems when having it, she also didn't show a temperature throughout this whole thing until the second night in hospital and that was because she was getting a BAD cold (yes we all have them now) and has been fine with regards to temp now.
Anyways, I'm tired and it is only 9:14! Hopefully I can try to get Amelia into bed (which has now been put on the floor incase she has a seizure and falls out of bed) soon and Aaron following.
Sunday, February 01, 2009
What has been happening.
As I already mentioned, I think, last wednesday night we noticed something funny about Amelia when we were putting her to bed. The next day we figured she had the flu as she was throwing up but she was still able to eat some toast at noon and again at dinner time...so not completely sure if it was or not. It was really Friday we noticed these "blank stares" she started to give us, some lasting a couple of minutes but on Saturday it lasted for nearly 9 minutes. This would be followed by her snapping out of it and then acting quite hyper for a bit, and then she would become quite exhausted. Jett called the doctor Friday and he checked her out and we thought to give it a day or the weekend to see if she improved since we "thought" she may have had the flu. Well Saturday came, and she had another bout, and this time I took our digital camera out and videoed her (not something I wanted to do but I wanted to be sure the doctor understood that this wasn't normal). So we went to the doctors saturday morning and he saw the video and basically told us to go to Stornoway hospital to get blood tests taken to rule out a few things (infection etc.). So up we went, and poor Amy had to give blood twice as the first sample was sent to a mini lab for emergencies and it showed her as anemic!! The second time showed she was completely fine. So we were to come back on Monday to see the Pediatrician. So we started to drive home when the car decided to stall and then not start again! It just seemed one thing after another! Anyways, to make this long story shorter, we stayed at the Campbells in Tolsta for the weekend and Monday went back to the hospital. The pediatrician saw the video and took another blood test (which again showed up absolutely fine) checked her ears (this was the third time to check ears) but nothing showed up. So he referred us to Glasgow. The Neurologist/Pediatrician he referred us to was born in Stornoway so probably was even more helpful in getting us over quickly as we left Tuesday morning (nearly missing the flight...thats another story though).
Tuesday - Amelia was admitted to Yorkhill hospital and we began the series of tests to eliminate whatever and to hopefully come to a conclusion.
E.E.G was the first test in which I have a photo of her with though not on here at the moment. There were 16 or so wires connected with GLUE to her poor wee head, she was quite good getting them on but not so getting them off the next day. And a video camera was at the end of her bed the whole night to catch her seizures and there were quite a few of them.
The next day Wednesday, once wires were removed, she had a CT scan to rule out any brain tumors or abnormalities and that came out just fine. She started an anti-epilepsy drug this night.
Thursday we got to go home to the manse instead of staying another night in the hospital (yeah!).
Friday we went to the hospital to check her eyes out again, eliminating another possibility T.S. but not sure what the long term name for it is. But again, that came out just fine as well.
All being well, Monday we have to see the doctor and hopefully by then the medication will have taken more effect, and another blood test will be taken some sort of chromosome test which takes 2 months or so to get back.
And thats all at the moment, as you can imagine it has been a highly stressful and emotional week for us. I'm sorry if I sound too matter of fact right here, but it is the best I can do just now as getting into more of the nitty gritty would take a lot of effort that I don't have just now. I do hope to update again but for now this will have to do. Many thanks to all for their thoughts and prayers.
Tuesday, January 27, 2009
Where do I begin?
Amelia has been having strange turns/fits or the like started Wed night. We've seen doctors Friday, Saturday and today and now tomorrow we are due to fly out Stornoway to Glasgow to see a Neurologist (I think unless it is a pediatrician). It seems Amy may have absence (minor) epilepsy.
And with that, I can't say more because we have little time to just relax even! Must run and check my pizzas in the oven.
Wednesday, January 21, 2009
The Simple Woman's Daybook...
Was going to post this either tomorrow or earlier today but here it is a bit late...saw this on a ladies blog and thought it was interesting, don't worry I never do these fwd's but thought this was interesting.
FOR TODAY (January 20, 2009)...
Outside my window...was sunshine but unfortunately has turned to grey clouds with wind and rain.
I am thinking...it is cold, but it could be much worse.
I am thankful for...my husband, children, family and friends, it amazes me that people could care and love someone such as me…I don’t think I’ll ever understand it.
From the learning rooms...since there are two of these: the one with J is filled partly with books, a computer of which is probably humming, some coffee in a thermos, and a mind working very hard on the several subjects he is studying like Hebrew. In the other room, there is the steady noise of either, crying, laughter, toys playing, and anything in between.
From the kitchen...the washing machine was running, but otherwise it is quiet.
I am wearing...A maternity denim skirt (that wasn’t hard to guess now was it!) and a white ¾ sleeved top.
I am creating...rather I just made (I don’t use the word create for anything I “make”) a skirt for Amelia.
I am going...everywhere! Never did I think I would be living in
I am reading...the Bible, Evening Thoughts by Winslow and the diary from Ruth Bryan.
I am hoping...these couple of months go by quickly; the last part of this pregnancy I’m dreading (no not the labour and delivery!).
I am hearing...Aaron choke on too big of a piece of bread from Amy. *sigh*
Around the house...is lots of unfinished laundry whether still drying, or needs to be folded or needs to be ironed and next to that scattered toys…unmade beds (what, you thought I was perfect?!) and some over all uncleanliness ook…tomorrow is cleaning day!
One of my favorite things...is to watch my children play with their Daddy – such a refreshing time to see them happy and enjoying their other parent for awhile. This brings lots of joy in the last part of the day in which I’m at my low levels of energy.
A few plans for the rest of the week: To go through the receipts of 4 weeks time, to get my laundry done, and get some cards made, and maybe even start another skirt for Amelia.
Here is picture thought I would share...Aaron didn't put Bear there, it was Amelia, but Aaron decided he needed to get off the chair I guess!
Tuesday, January 20, 2009
Of Rat, wind/rain/snow, nearly walking and organizing!
This past weekend has been the worst yet for weather. Seemed like hurricane winds Saturday night, and then Sabbath morning while driving to Sheilebost it started to snow heavily which I might add made the landscape gorgeous until the sun decided to melt everything *sigh*.
And this is what I was busy with last week. (Thanks to Henrietta for sending this!) I went through it all and decided that I would never use it all, soo, I split it in half and mailed the rest to someone (you'll know who you are when you get it this week abw). :)
On one of the many long nights with Aaron...he decided this particular night to cough and throw up on his sleeper and therefore he is dressed this way.
The first time I really allowed her to paint (I bought some paint in Texas) and she thoroughly enjoyed it.
Thursday, January 15, 2009
Trip photos, developments and etc
We stayed at James and Hayley's for the first week and then at Joseph and Carolyn's the second.
Hays took me shopping one day...heehee, and it proved quite successful lots of sales at a resale shop meaning next to nothing for childrens clothing and even tops for a pregnant mom! :D So we went to Baskins (a western clothing shop) and I let A & A try on cowboyish hats.
Again all mixed up, here is Aaron in the bassinet they attached to the wall of the plane...the only thing is, I had a blue wall to look at for 8 or so hours!! :S
Almost so cute...if only my kids were more into getting their photos taken... a very nice one of C & C though!
At Care's now, A & Julia are here playing in the sand/dirt...ugh, and it got into A's hair, and clothes meaning another bath. :)
One morning I found A looking at A sleeping and waiting for him to wake up...I thought it was cute. :)
Maybe Mark used to wear these? ;) J/K we had dinner at Mark and Mercy's and I snapped this one...sigh, I think I failed getting any of the actual couples... grrrr! I wasn't really into taking photos this trip. :(
A likes anything that plays music, and the violin was no exception :) here she got to try it out with U. Sam.
I wanted to get a pic of A with a "Ernie Smith and Son's Roofing" hat...it didn't work but it looked so cute on him I had to try!
And my last photo (I didn't take many can you tell!?) Em, is this 4 generations?
Grandpa Al, Dad, Jett and Aaron.
Now for the quick thing on developments...
On Sabbath Aaron popped his first tooth out, Monday he discovered how to climb the stairs (AHHH!) and then Tuesday he discovered how to open the door to get to the stairs. Today? He is trying to walk behind a stroller and push it (Amy's play stroller). Oh boy, he is doing things too fast for me.
And were going up to Stornoway again today! My antenatal appointment is this afternoon and J wants to come. He is the better one at getting questions delivered and properly answered to his satisfaction. :) And hopefully another ultrasound? Hmm...I wonder if it is a girl or boy...sigh, I know I shouldn't find out...but it is tempting. :) Ok, must run and get lunch made!
Tuesday, January 13, 2009
Announcment!
Sunday, January 11, 2009
Home at last...
Yes, we finally made it home Thursday evening and wow, what a journey it has been! Two very long days of traveling. At first our flight was supposedly cancelled (Houston to Paris) but was actually delayed by a couple of hours...meaning we missed our connection in Paris and had to wait a couple of hours there before finally getting on another plane for Edinburgh. Sheena welcomed us in her home with a lovely warm meal...and after such a long day it felt so nice to have a good meal for once! We would have had a good night I suppose if I checked Aaron's diaper sooner (note to self, check diaper first before anything else) but we ended up trying to feed him, rock him etc until Jett suggested checking his diaper...poor thing, I felt so bad! The next day we mistakened what time the ferry was to leave Uig so we rushed out the door and drove nearly straight through (although we made a few stops to get gas, switch drivers but the kids stayed in the car seats the whole way through and were good!). The ferry was to leave at 3:00 and we made it there at 2:58 or so?? Heehee...yes, we barely made the ferry but we made it! I was so glad to, because the stress of having to find a B&B for two nights was not something I looked forward to (the ferry wasn't sailing Friday). It was smooth sailing (lol pun intended) for the rest of the journey home...but the house was so cold! Anyways, we are here, and trying to get used to the wind and rain again, as well as the time change. Last night was a good night for the kids but Jett and myself were struggling trying to get to sleep, ah well, it will come soon I hope. :)
No pics for now seeing we just got back, but I do hope to post next week when we've finally got into a routine again. For now, I'll be dealing with runny noses, kleenex's and re-training my girl to use the potty! Oh...and back to cloth (diapers) it is yippie! :)
Friday, December 19, 2008
Day 19 of incubating and counting...
Why haven't I blogged lately? Hmm...don't know, I guess I've been busy with laundry, and cleaning and so forth before this weekend, and not to mention the bad nights we've had lately they all factor in too. Oh, I've had photos to put up and I was planning on blogging sooner to sign off for the next two and half weeks but I'm afraid I don't see it happening. So, if we go to Texas on the 23rd (next Tuesday) you won't be hearing from me, and if we don't, it is likely you still won't be hearing from me till the New Year. So, Happy New Year everyone! See you all being well, in 2009. And for now, I retire for a holiday...well, maybe :)
Saturday, December 13, 2008
Children are funny :)
I was taking the chicken out of the oven and sticking a thermometer in it to make sure it was done (it was) and Amy was watching me...all of a sudden she says " Eww! Gross, gross!" I guess the chicken looked gross LOL! Needless to say Jett and I had a good laugh. :)
Wednesday, December 10, 2008
Chickenpox?
Sunday, December 07, 2008
Saturday already?
And I know I haven't been posting all this week, but when you don't have a normal routine...em, I mean your husband home your left with very little motivation to do much. I did do lots the day he left but Wed fell through the cracks, and so did Thursday nearly, but I knew I couldn't have Jett come home to a messy house so I was rushing around till I got it fairly decent for his arrival as well as dinner of course, you need to keep a man fed...and it is nice to have a "nice" meal if he has been gone for a while. :)
This morning was my usual routine for a Saturday: think about tomorrows meal and tonight's, baths for the kids and another highlight though it was done in the afternoon, I cut Jett's hair. Does anybody realize that I'm easily intimidated by those who know how to do these kinda things well (as in having done that sort of thing for years and years)? I was never taught to cut hair but just through trial and error learned a sort of way to do Jett's. Thanks to my wee brother for letting me do his a few times (he always buzzed it all off anyways). To this day I cringe at cutting hair, I'm afraid of making a mistake, and having people who know how to do it look at it and say "she should have cut that better" etc. Ok, too much info from me! Just a note though, I plan on teaching my daughters (well one so far) the ins and outs of everything while they are young...I had to learn at too old of an age! I never would have known that these skills were so important in later life (although it is obvious they are), but hope that my children will learn them early so that maybe they will be much better by the time they need them.
Ah I know I'm very wordy! I only have a few pictures and a video clip for you, sorry, didn't feel motivated to take much this week either seeing Jett was gone. But enjoy anyways. :)
Have a lovely weekend! :)