I think we've been settling back into a routine again and it feels nice! Unfortunately I still have to deal with Amy's seizures (not the ones where she is shaking and very stiff) and it isn't always easy. For example I was in the kitchen last night cleaning up the dishes and keeping my ear open for strange noises when it went silent in the next room...I went in and saw Amelia on the floor in a trance looking at the ceiling. She had fallen over obviously...but it just reminds me how I can't let her climb stairs by herself nor go down them by herself! We've got colds just now (again!!) and it has to have the cough too, so Amelia is awake in the middle of the night hacking away...I find cough syrup takes toooo long to start working. So yes, sleep deprived we are - nothing new there though! :)
So, here is my first picture...and it is rather special to me now after the week we've been through. Doesn't she look princess like? Yes, she is our little princess, delicate in some ways and stubborn in others. This is the skirt I sewed for her before she took these seizures, looks ladylike if you ask me! Thanks to Care for the pattern - it worked out lovely.
I think I'm learning the hard way to appreciate my children. As mothers we all get frustrated at times with our children, but I hope I'm learning to prize them more. You just need to go to a sick children's hospital to realize how thankful we ought to be for our children and how healthy they are!! It doesn't change the fact I'm still trying to come to terms with her disorder but it is not nearly as bad as some of the things I've seen in hospital. I admit I wasn't able to cope during the first days of her turns, partly because it was the fear of the unknown. I had no idea what was going on and I was afraid of her going mentally retarded which would mean me losing my daughter not physically but well, you know what I mean. Anyways, it is how it is now and I just hope she outgrows it!This photo was taken the Saturday before we went up to Stornoway the first time to see the doctor. That is Jett walking on the beach in Northton. It was nice to see something calming when we were going through so much.
Another scene of the beach in Northton...one of my favourites although Jett likes the other one I caught in which the picture is sharper, but this one seems softer to the eyes... :)
Jett and the beach again.
I've been wanting to get the hills with snow on the top and so far these are some of the better ones I've been able to capture. This is outside Tarbert on the way towards Stornoway.
Amelia giving a funny grin :)
And here it when she had the EEG done. About 16 wires were GLUED to her head and I mean glued because she still has spots of glue on her scalp. She had to carry around a little bag attached to her waist in which a usb cord was connected to a computer with a camera...yes, that meant she couldn't get around very far, thankfully this was done in the afternoon so it wasn't hard to keep it from bothering her during the night.
After she was disconnected from the computer the next morning she was able to go and play, and here you can see the bag she had to cart around.
Looks dreadfully uncomfortable, but she didn't seem to notice, the toys were great, and huge selection and plenty of them.
Nearing the evening time, when Amelia got all the wires off, and then had a fun fun bath...I suppose they just got tuckered out here.
I like this one. I know Aaron was drinking but he was smiling so much at the same time. And Amy was happy too.
So, there you have my picture update. Now I need to figure out what is for lunch and check on the fire I made in the other room (I give up on those, I never seem to make them big enough and they never seem to heat much of the room up!!). Oh, and I'm almost 26 weeks pregnant (Monday)...wow, by the way, I think it will be a boy...but how do I know, both pregnancies before I said the same thing and was right only once...maybe this will surprise me and be a girl haha...I have doubts though. :) Whatever he or she is, I think I'll love s/hejust as much as my other two. :)
